Connecting Matters: Expand Your Circle

By Colin Butler, MS, CSCS, ACSM-GEI, EIM and CF Warrior and Dr. Sam Monson, Clinical Psychologist and CF Patient

It can feel awkward or even exhausting trying to explain your health stuff to people who haven’t lived it. Why you wear a mask indoors. Why you skipped that concert. Why you left early from a gathering.

But being open, when you’re ready, can actually help your friendships grow stronger. You don’t have to share everything right away. Go at your own pace. The people who stick around? They’re the ones who are worth it.

A good way to start building friendships is by showing up in places tied to your interests. Shared passions create natural conversation, and relationships can grow from there without everything revolving around your health. At your own comfort level, attend a meet-up group that interests you. Remember that you don’t have to share that you have CF until you feel ready, and sometimes it takes time to build that trust.

Another option is to seek support from people who understand what it means to live with a chronic condition. If you’re in school or college, look for campus groups focused on accessibility, chronic illness, or mental health.

Be prepared to protect your health. Sometimes you will need to say “no” when you want to say “yes.” Boundaries aren’t barriers, they’re just ways to protect your energy and health so you can show up more fully in the moments that matter.

Here are a few go-to phrases that might help you out when you need to explain things. Providing a solution can help facilitate the connection.

“I’d love to come, but I have to avoid crowded indoor spaces to stay healthy. Could we pick a restaurant with a patio?”

“Because of my lungs, I have to be really cautious about infections, but I’d be up for a virtual hangout!”

When someone responds with support, letting them know the impact can deepen the growing relationship. It can be something as simple as,“Thanks for understanding that I have some limits. It means a lot.”

You don’t owe anyone a deep dive into your medical file. But giving people a little insight, especially if they care about you, can help them show up in better ways.

It’s totally okay to take breaks when you need them. Connection should feel comforting, not like another chore.