Connecting Matters: Even When You Don’t Wanna

By Colin Butler, MS, CSCS, ACSM-GEI, EIM and CF Warrior and Dr. Sam Monson, Clinical Psychologist and CF Patient

Let’s be honest: when you’re in a flare-up or stuck in the hospital, staying social is probably the last thing on your mind. But even little moments of connection, like a “thinking of you” text, a silly meme, or a quick voice message, can lift your spirits.

If you’ve got the energy, try building yourself a “low-energy social toolkit.” That might include:

  • A chill group chat where you can just send emojis and no one expects more

  • A book or podcast club you can follow passively

  • A Discord server where you can join (or just lurk) when you feel up to it

  • A playlist of feel-good videos you can share or watch when you need a lift

It’s totally okay to take breaks when you need them. Connection should feel comforting, not like another to-do.

Protecting your physical health matters. So does protecting your emotional well-being. You don’t have to pick one over the other. You can draw boundaries and let people in. You can say no to an event and say yes to a friend. You can be cautious and connected.

You are not a burden. You are not alone. You’re allowed to protect your body and open your heart to others. You’re still part of the world, and the world is better with you in it.

At the end of the day, you deserve connection, on your terms. Whether you’re texting from bed, showing up to a Zoom hangout, or just chatting online with someone who gets it, you are building community in a powerful way.

Often times, people want to be supportive, they just don’t know how. Consider gently letting them know what you need. For example, when you’re in the hospital you might say, “I so appreciate you reaching out. I’m too worn out for visitors, but I’d love a phone chat if that would work for you.”

And remember, relationships are a two way street. So when you’re up for it, reach out and ask others how you can support them. Giving back when you have the energy can help you receive support without guilt when your turn comes back around.

CF might change how you connect, but it doesn’t stop you from forming strong, joyful, meaningful relationships. The path just looks a little different, and that’s okay.