Men's Sexual and Reproductive Health
Male CF sexual and reproductive health (SRH) discussions often ignore issues males may face. Join us for important discussions around hormonal imbalances, infertility, body image issues and sexual function.
Our team is focused on:
- Hosting virtual meetings on SRH topics in which males with CF share experiences and concerns in a supportive environment. Attendees can interact with leading researchers and build community by sharing their stories in a supportive format.
- Developing and sharing educational content written by male CF ambassador(s)
- Creating a patient/partner driven SRH screening checklist for clinical use by patients and providers
Resources
Video: Genetic Testing and Counseling Considerations for Males with CF
Genetic Counselor Elinor Schwind, MS, CGC, from Northwell Health, shares the importance of genetic screening when considering family building. This video is 28:30 minutes long.
Video: Urology in Males with CF
Miami University urologist Dr. Ranjith Ramasamy provides an overview of male sexual and reproductive health, including detailed information on assisted reproductive therapy. This video is 27:24 minutes long.
Male Health and CF
This chapter of the Cystic Fibrosis Reproductive and Health Collaborative Guide, written by patients for providers and patients, offers a broad overview of the unique issues males with CF face. It can be downloaded in PDF format.
Did you know?
- Infertility occurs in about 95-98% of males with CF.
- Low testosterone levels affect up to 88% of men with CF compared with up to 12% of their healthy peers.
- 65% of males report sexual dysfunction, primarily due to lack of ejaculate.
- CF can potentially affect the development or function of the prostate.
- More than 80% of men with CF express desire to have children.
- Sperm retrieval rates can be as high as 100%.
Upcoming Events
Low Testosterone in Males with CF
July 9, 2024
Virtual Event
8-9:30 pm ET, 7-8:30 pm CT, 6-7:30 pm MT, 5-6:30 pm PT
MEETING FOR MALES WITH CF. Dr. Thomas Masterson III, a urology specialist from the Univeristy of Miami will offer a presentation on Low Testosterone in males with CF. Reuben Samuels, of Breathe Easy International and a male with CF, will discuss his journey treating his low testosterone.
The presentation will include Q/A with both speakers.
Uncomfortable Conversations:
Talking to your partner about infertility
June 26, 2024
Virtual Event
6:30-8 pm ET, 5:30-7 pm CT, 4:30-6 pm MT, 3:30-5 pm PT
MEETING FOR MALES WITH CF. Join the conversation to share your stories and experiences and learn new strategies.
Moderated by CF licensed social workers, Bill Longacre from the University of Pennsylvania and Bob Goodholm from the Mayo Clinic.
Hypogonadism, Low T, and Screening
May 2, 2024
Virtual Event
3-4:30pm ET (12-1:30pm ET)
MEETING FOR MALES WITH CF. Join Miles for CF to learn about “Hypogonadism and Low T, and Screening.” Males aged 18 and over with CF are invited to join to listen to the presentation, engage with the presenter, and share their stories. The presentation will be recorded.
Supported in part by an Impact Grant from the CF Foundation
