Navigating Growth With Cystic Fibrosis
By Jhoanna Rae Marquez, PT, DAC, INHCThe role of movement
Physical activity is an important non-pharmacological part of cystic fibrosis (CF) care. It can support exercise capacity, strength, emotional well-being, and confidence in everyday play and participation.
Because CF affects the CFTR protein, it can lead to thick secretions affecting the lungs and pancreas. Beginning movement habits early can help children build the physical foundation for an active life alongside their individualized medical care.
Infancy: building the foundation
During the first year, developmentally appropriate movement supports mobility, postural control, core strength, coordination, and endurance. These foundational skills can also promote comfortable breathing mechanics and fuller participation in play and family routines.
The goal is not structured exercise. It is to offer regular, enjoyable opportunities for your baby to explore movement at their own pace.
A team-based approach
Every child with CF is unique. Work with your child’s CF multidisciplinary team to support development, adjust activity during illness or recovery, and identify movement strategies that fit your child’s needs and your family’s daily routine.
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