If you’re working for an employer in the United States, it’s important to know that you have rights under the Americans with Disabilities Act (ADA). This law allows you to request reasonable accommodations that would help you perform your job effectively while also managing your health.

Reasonable accommodations can take many forms, depending on your role and needs. For some people, this might mean a more flexible schedule or time off for treatments and recovery. Others may benefit from remote or hybrid work options, a private space for medications or airway clearance, modified duties during flare-ups, or reduced travel requirements. These adjustments aren’t about doing less, they’re about creating conditions that allow you to do your best work.

Starting the conversation doesn’t have to be intimidating. While you may eventually need a note from your healthcare provider, you can begin informally by talking with your manager or Human Resources. Focus on what you need in order to be successful at work. You’re not required to disclose every detail of your diagnosis, only the support that will help you thrive.

If you’re not sure what accommodation might be appropriate, the Job Accommodation Network (askjan.org) is an excellent, free resource that offers guidance for both employees and employers.

Sometimes, even with accommodations in place, working full-time, or at all, may not be possible. In those situations, disability benefits can provide important financial support.

In the US, there are two primary federal disability programs. Social Security Disability Insurance (SSDI) is available to people who have worked in the past but are no longer able to work due to a disability. Supplemental Security Income (SSI) supports individuals with limited income and resources who cannot work because of disability.

Cystic fibrosis often qualifies under these programs, particularly for those with frequent hospitalizations, reduced lung function, or other serious complications. The application process can feel overwhelming, so having your medical records organized is key. Many people also find it helpful to work with a social worker or a CF Foundation Compass case manager for guidance and support.

It’s worth knowing that disability benefits don’t have to mean the end of working altogether. Programs like Ticket to Work allow some individuals to work part-time while receiving benefits. You don’t have to decide everything at once. There are options, and there is room for flexibility as your needs change.