Men's Sexual and Reproductive Health

 

 

 

Male CF sexual and reproductive health (SRH) discussions often ignore issues males may face. Join us for important discussions around hormonal imbalances, infertility, body image issues and sexual function. Our meetings are open forums to have uncomfortable conversations about your sexual reproductive health with providers, researchers, and other males with CF.

Our team is focused on:

  • Hosting virtual meetings on SRH topics in which males with CF share experiences and concerns in a supportive environment. Attendees can interact with leading researchers and build community by sharing their stories in a supportive format.
  • Developing and sharing educational content written by male CF ambassador(s)
  • Creating a patient/partner driven SRH screening checklist for clinical use by patients and providers

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Resources

Video: Genetic Testing and Counseling Considerations for Males with CF

Genetic Counselor Elinor Schwind, MS, CGC, from Northwell Health, shares the importance of genetic screening when considering family building. This video is 28:30 minutes long.

Video: Urology in Males with CF

Miami University urologist Dr. Ranjith Ramasamy provides an overview of male sexual and reproductive health, including detailed information on assisted reproductive therapy. This video is 27:24 minutes long.

Male Health and CF

This chapter of the Cystic Fibrosis Reproductive and Health Collaborative Guide, written by patients for providers and patients, offers a broad overview of the unique issues males with CF face. It can be downloaded in PDF format.

Recorded Webinar: Low Testosterone in Males with CF

This recorded webinar from July, 2024 was led by Dr. Thomas Masterson III, a urology specialist from the Univeristy of Miami.

Did you know?

  • Infertility occurs in about 95-98% of males with CF.
  • Low testosterone levels affect up to 88% of men with CF compared with up to 12% of their healthy peers.
  • 65% of males report sexual dysfunction, primarily due to lack of ejaculate.
  • CF can potentially affect the development or function of the prostate.
  • More than 80% of men with CF express desire to have children.
  • Sperm retrieval rates can be as high as 100%.

Events

Introduction: The Long and Short of It

Thursday, November 14, 2024

Virtual Event, 60 minutes
7 pm ET, 6 pm CT, 5 pm MT, 4 pm PT

MEETING FOR MALES WITH CF. Join us to meet the team and learn more about BreatheStrong CF’s Men’s Sexual and Reproductive Health 2025 series. You can help make sure the series addresses issues important to you!  We’re excited to introduce new incentives for participation, as well as a “bring a friend” initiative to help grow our program. We look forward to seeing you there!

Supported in part by an Impact Grant from the CF Foundation