Men's Sexual and Reproductive Health

 

 

 

Males with CF face sexual and reproductive health (SRH) and well-being issues, including testosterone deficiency, sexual function/dysfunction, sexually transmitted infection (STI) management, and family-building decisions (marriage and fatherhood), among others. Many men are interested in SRH research, resources, and clinical services and have unanswered questions and untreated symptoms.

Our patient-centered program seeks to raise awareness of male CF-SRH concerns and provide a supportive environment to engage with researchers, providers, and peers. We host virtual meetings to share helpful information and resources for males to learn about CF-SRH issues.

Our meetings:

  • Are hosted by males with CF,
  • Provide speakers who are experts in their fields (clinicians, researchers, and peer panelists),
  • Give attendees the opportunity for Q & A with the experts,
  • Build community by providing a forum for uncomfortable conversations on sensitive topics,
  • Encourage CF males to share their stories and learn from others, and
  • Strive to raise awareness of the SRH issues faced by our community.

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Events

It’s About Longevity: Laying the Foundation for CF Men’s Health

Thursday, January 9, 2025

Virtual Event, 90 minutes
8 pm ET, 7 pm CT, 6 pm MT, 5 pm PT

MEETING FOR MALES WITH CF.

Join us to discuss the building blocks of male CF health. University of Kansas Medical Center Clinical Dietitian Ellie Jobst will focus on foods that promote sexual health. Joseph Bores and Billy Fritsch, both males with CF and certified personal trainers, will discuss building stamina for a healthier, longer life. Healthier habits play a vital role in longevity and sexual health.

Educational Guest(s):

  • Ellie Jobst – University of Kansas Medical Center Clinical Dietitian
  • Joseph Bores – Physical Therapy Assistant and Certified Personal Trainer 
  • Billy Fritsch – Certified Personal Trainer and Certified Strength and Conditioning Specialist (CSCS)

Billy Fritsch

Joseph Bores

Functional Health & Hormones

Thursday, February 13, 2025

Virtual Event, 90 minutes
8 pm ET, 7 pm CT, 6 pm MT, 5 pm PT

MEETING FOR MALES WITH CF.

This session will be discussing the total hormone picture throughout the body, from stress and functional hormones to sex hormones and builds on the shoulders of the previous session

Educational Guest:

Dr. Anthony Evans – Align For Life Health – Doctor of Chiropractic and Functional Medicine with a specialty in hormone balancing and optimization

Low Testosterone

Thursday, March 13, 2025

Virtual Event, 90 minutes
8 pm ET, 7 pm CT, 6 pm MT, 5 pm PT

MEETING FOR MALES WITH CF.

This session will be an in-depth discussion on the mechanics of hypogonadism and functions of testosterone along with current and emerging therapeutic options, pros and cons 

Educational Guest:

Dr. Thomas Masterson III – Assistant Professor of Urology at Desai Sethi Urology Institute and University of Miami Miller School of Medicine

Having the Balls to Talk about the Brain

Thursday, April 10, 2025

Virtual Event, 90 minutes
8 pm ET, 7 pm CT, 6 pm MT, 5 pm PT

MEETING FOR MALES WITH CF.

This session will discuss the overall impact of sexual health issues on the mental and emotional wellbeing of the person(s) affected. This will touch on personal impacts and relationship and social dynamics, how to navigate them, and tips to find proper resources for support.

 

Did you know?

  • Infertility occurs in about 95-98% of males with CF.
  • Low testosterone levels affect up to 88% of men with CF compared with up to 12% of their healthy peers.
  • 65% of males report sexual dysfunction, primarily due to lack of ejaculate.
  • CF can potentially affect the development or function of the prostate.
  • More than 80% of men with CF express desire to have children.
  • Sperm retrieval rates can be as high as 100%.

Resources

Video: Genetic Testing and Counseling Considerations for Males with CF

Genetic Counselor Elinor Schwind, MS, CGC, from Northwell Health, shares the importance of genetic screening when considering family building. This video is 28:30 minutes long.

Video: Urology in Males with CF

Miami University urologist Dr. Ranjith Ramasamy provides an overview of male sexual and reproductive health, including detailed information on assisted reproductive therapy. This video is 27:24 minutes long.

Male Health and CF

This chapter of the Cystic Fibrosis Reproductive and Health Collaborative Guide, written by patients for providers and patients, offers a broad overview of the unique issues males with CF face. It can be downloaded in PDF format.

Video: Low Testosterone in Males with CF

Urology specialist, Dr. Thomas Masterson III, from the University of Miami discusses hormone testing and hormone replacement therapy for males. This video is 22:50 minutes long.

Supported in part by an Impact Grant from the CF Foundation